Join us for a group discussion on highlights and reflections from day 2 of the Long COVID Physio International Forum with Dr Jimmy McKay, Darren Brown, Ciara Breen, Dr Brendan Delaney, Dr Mark Faghy, Dr Caroline Appel and Dr Pauline Oustric.

This session will end with closing remarks of the Long COVID Physio International Forum by Darren Brown.

• Dr Jimmy McKay, Science Communicator for the Department of Rehabilitation and Human Performance at Mount Sinai Hospital System, USA

• Darren Brown (he/him), Chair Long COVID Physio and Clinical Academic Physiotherapist, UK

• Ciara Breen, Occupational Therapy Manager Galway University Hospitals, and HSCP representative on the HSE Long COVID Working Group, Ireland

• Dr Brendan Delaney, Chair in Medical Informatics and Decision Making Imperial College, UK

• Dr Mark Faghy, Associate Professor in Respiratory and Physiology at the University of Derby, UK

• Dr Caroline Appel (she/her), Long COVID Physio Open Executive Member, UK

• Dr Pauline Oustric, Co-Founder and President ApresJ20 Covid Long France, France

• César Manuel Lepe Medina, Founder and admin COVID Persistente México Comunidad Solidaria, Mexico

Orthostatic Intolerance, Dysautonomia and POTS

In this Discussion session chaired by Dr David Strain, Orthostatic Intolerance, Dysautonomia and POTS will be discussed by Dr Asad Khan, Lauren Styles, Dr Jenna Tosto Mancuso, Emily Rich, Lindsay Skipper, and Dr Anjali Agarwal.

• Dr David Strain, Senior Clinical Lecturer University of Exeter Medical School, Medical Advisor Action for ME, and British Medical Association Medical Academic Staff Committee Chair, UK

• Dr Asad Khan, Doctors with ME, Long COVID Kids champion, and #TeamClots researcher, UK

• Lauren Stiles, CEO Dysautonomia International, and Research Assistant Professor of Neurology Stony Brook University Renaissance School of Medicine, USA

• Dr Jenna Tosto Mancuso, Clinical Director, Abilities Research Center at Mount Sinai Health System, New York, USA

• Emily Rich, Occupational Therapist Tucson Medical Center and Texas Woman's University, USA

• Lindsay Skipper, Long COVID Physio Peer Support Co-Director, UK

• Dr Anjali Agarwal, Long COVID Physio Advocacy Co-Director, and Consultant Physiotherapist, India

Learning Objectives:

1. To better understand the aetiology and pathogenesis of orthostatic intolerance, dysautonomia, and postural orthostatic tachycardia syndrome

2. To better understand the treatment and rehabilitation approaches to manage orthostatic intolerance, dysautonomia, and postural orthostatic tachycardia syndrome

Daily Activities and Work

In this Workshop session on the impact of Long COVID on daily activities, work and education led by Helen Skiffington, Dr Jenny Ceolta-Smith, Nathan Hutting and Lesley Macniven, everybody will have a voice to share experiences and learn collaboratively. This workshop will be delivered in partnership with FisioCamera.

• Helen Skiffington, Long COVID Physio Allied Health Profession (AHP) Co-Director, and Co-Founder Occupational Therapy for Long Covid, UK

• Dr Nathan Hutting, Associate Professor HAN University of Applied Sciences, Netherlands

• Lesley Macniven, Long Covid Support employment group Chair, Scotland

• Dr Susannah Thompson, Long Covid SOS and Long Covid Kids Champion, UK

Learning Objectives:

1. To better understand how Long COVID symptoms and impairments result in activity limitations and social participation restrictions

2. To better understand the rehabilitation approaches and accessible environments that support people to manage daily activities, work or study, that are negatively impacted by Long COVID

Episodic Disability

In this Science session Dr Kelly O’Brien will present on the conceptualisation and measurement of Episodic Disability, followed by a panel discussion with Cathy Thomson, Natalie Rogers, Dr Manoj Sivan, and Niamh Roche.

• Dr Kelly O’Brien, Long COVID Physio Disability and Rehabilitation Co-Director, Associate Professor Department of Physical Therapy Institute of Health Policy Management and Evaluation (IHPME) and Rehabilitation Sciences Institute (RSI) University of Toronto, and Co-Director Rehabilitation Research Network for COVID Temerty Faculty of Medicine University of Toronto, Canada

• Cathy Thomson, Long COVID Physio Advocacy Co-Director, UK

• Natalie Rogers, Trustee Long Covid Support, UK

• Dr Manoj Sivan, Associate Clinical Professor University of Leeds, Consultant in Rehabilitation Medicine Leeds Teaching Hospitals and Community Healthcare NHS Trusts, and President-Elect British Society of Physical and Rehabilitation Medicine, UK

• Niamh Roch, Long COVID Ireland, Ireland

Learning Objectives:

1. To better understand the conceptualisation of Long COVID a multi-dimensional, episodic and unpredictable healthcare condition

2. To better understand emerging data on episodic disability experienced by people living with Long COVID and how to measure episodic disability

Epistemic Injustice and Empowering Conversations in Healthcare

In this Workshop session on epistemic or testimonial injustice (and gaslighting), led by Dr Ana Leite, Dr Dianne O'Leary, and Dr Alison Flynn, everybody will have a voice to share experiences and learn collaboratively. This workshop will be delivered in partnership with FisioCamera.

• Dr Ana Leite, Associate Professor Department of Psychology Durham University, UK

• Dr Diane O'Leary, Adjunct Full Professor in Philosophy University of Maryland Global Campus, USA

• Dr Alison Flynn, Clinical Psychologist & Associate, UK

Learning Objectives:

1. To better understand epistemic or testimonial injustice in healthcare settings

2. To better understand how to avoid epistemic injustice, and experience empowered conversations in healthcare setting using psychologically informed advanced communication skills

Please Note: Workshops will not be recorded for on demand content

Long COVID in Children and Young People

In this Discussion session chaired by Dr Jennifer Audette, Long COVID in Children and Young People will be discussed by Sammie Mcfarland, Kirsty Stanley, Dr Binita Kane, Dr Alison Twycross, Sarah Walker, Dr Eleni Iasonidou and Cara Kaup.

• Dr Jennifer Audette, Physical Therapy Program Director and Associate Professor University of New England, USA

• Sammie Mcfarland, CEO & Founder of Long Covid Kids, UK

• Kirsty Stanley, Independent Occupational Therapist at Occupation4Life Ltd, OT at Long Covid Kids, and Co-Founder for Occupational Therapy for Long Covid and Long Covid Work, UK

• Dr Binita Kane, Consultant Respiratory Physician in Manchester, Long COVID Kids Champion, UK

• Dr Alison Twycross, Former Deputy Dean and Professor of Children’s Nursing, Editor-in-Chief Evidence Based Nursing, and Chair Long Covid Nurses and Midwives, UK

• Sarah-Jayne Walker, Lead Conductive Educator Naomi’s Garden, UK

• Dr Eleni Iasonidou, Paediatrician, President of Long Covid Greece, and Lead Long Covid Kids Representative for Greece, Greece

• Cara Kaup, Long COVID Physio Peer Support Co-Director, Paediatric Physical Therapist, Canada

Learning Objectives:

1. To better understand how Long COVID and disability is experienced in children and young people

2. To better understand how rehabilitation can safely support children and young people living with Long COVID

Current Landscape of Long COVID Research

In this Science session Dr Elaine Maxwell will present on the landscape of pivotal, new and emerging Long COVID research, followed by a panel discussion with Dr Nisreen Alwan, Dr Athena Akrami, Dr Janet Prvu Bettger, Tuuli-Marjatta Latvala, Dr Claire Taylor and Dr Karen Matthews.

• Dr Elaine Maxwell, Trustee Long Covid Support, and Visiting Professor London South Bank University, UK

• Dr Nisreen Alwan, Associate Professor in Public Health, University of Southampton, UK

• Dr Athena Akrami, Co-Founder Patient-Led Research Collaborative, and Neuroscientist at Sainsbury Wellcome Centre University College London (UCL), UK

• Dr Janet Prvu Bettger, Associate Professor and Chair of Health and Rehabilitation Science Temple University College of Public Health, USA

• Tuuli-Marjatta Latvala, Master of Health Sciences, Physiotherapist, Long COVID Advocate, Finland

• Dr Karen Matthews, Long Covid SOS Trustee, UK

• Darren Brown (he/him), Chair Long COVID Physio and Clinical Academic Physiotherapist, UK

Learning Objectives:

1. To better understand the breadth of Long COVID research including epidemiology, mechanisms and pathogenesis, treatments and interventions, disability, and rehabilitation

2. To better understand research gaps and emerging priorities in Long COVID research

Dr David Putrino

In this Keynote presentation Dr David Putrino will present latest research findings on mechanisms and causes of Long COVID that can guide safe rehabilitation interventions.

• Dr David Putrino, Director of Rehabilitation Innovation for the Mount Sinai Health System, and Associate Professor of Rehabilitation and Human Performance at the Icahn School of Medicine at Mount Sinai, USA

Opening of day two of the Long COVID Physio International Forum with welcomes from Darren Brown, Dr Jimmy McKay, Etienne Ngeh and Dr Malissa Martin.

• Darren Brown (he/him), Chair Long COVID Physio and Clinical Academic Physiotherapist, UK

• Dr Jimmy McKay, Science Communicator for the Department of Rehabilitation and Human Performance at Mount Sinai Hospital System, USA

• Etienne Ngeh, Long COVID Physio Equity Diversity and Belonging Co-Director, Head of Physiotherapy Department St. Louis University, Bamenda, and Physiotherapy service lead at the Regional Hospital in Bamenda, Cameroon

• Dr Malissa Martin, Dean College of Health Science Lifelong Learning and Vice Provost Academic Affairs Rocky Mountain University of Health Professions, USA

Join us for a group discussion on highlights and reflections from day 1 of the Long COVID Physio International Forum with Dr Jimmy McKay, Darren Brown, Dr Elisa Perego, Netia McCray, Dr Ted DeChane, Ruth Ainley and Mia Diekow.

• Dr Jimmy McKay, Science Communicator for the Department of Rehabilitation and Human Performance at Mount Sinai Hospital System, USA

• Darren Brown (he/him), Chair Long COVID Physio and Clinical Academic Physiotherapist, UK

• Dr Elisa Perego, Honorary Research Fellow University College London, Italy

• Netia McCray, Mbadika Executive Director and Long COVID Advocate, USA

• Dr Ted DeChane, Long COVID Physio Communications and Social Media Director, USA

• Ruth Ainley, Long COVID Physio Peer Support Co-Director, UK

• Mia Diekow, Long COVID Deutschland, Germany

• Elizabeth Semper, Teacher graduated in Pedagogy, President Asociación Covid Persistente España, Spain

• André Saravia, Intensive Care Nurse Technician and President Long Covid Chile, Chile

Long COVID, Disability and Bias

In this Discussion session chaired by Dr Uchenna Ussai, Long COVID, disability and bias will be discussed by Chimere Smith, Ashanti Daniel, Tracey Thompson, Dr Marcia D, Nnenna Chigbo and Monique Jackson.

• Dr Uchenna “UC” Ossai (she/her), Assistant Professor University of Texas Dell Medical School, pelvic health program manager UT Health Austin, You See Logic, USA

• Chimére Smith, Long Covid Consultant for Urban Communities and Families, USA

• Ashanti Daniel, Registered Nurse, chronic illness advocate, USA

• Tracey Thompson, CIHR patient partner, Canada

• Dr Marcia D (she/they), Owner Move with Marcia, USA

• Nnenna Nina Chigbo, President Nigeria Society of Physiotherapy, Department of Physiotherapy University of Nigeria Teaching Hospital, Enugu, Nigeria

• Monique Jackson, Trustee Long Covid Support, UK

Learning Objectives:

1. To better understand how invisible illnesses and episodic disabilities are experienced through the lens of intersectionality

2. To better understand unconscious bias and discrimination in Long COVID and other health conditions within healthcare settings

Pacing

In this Workshop session on pacing led by Dr Julia Moore Vogel, Prof Leonard Jason, Dr Michelle Bull, and Prof Todd Davenport, everybody will have a voice to share experiences and learn collaboratively. This workshop will be delivered in partnership with FisioCamera.

• Dr Julia Moore Vogel, Program Director, Scripps Research, USA

• Prof Leonard Jason, Professor of Psychology, DePaul University, USA

• Dr Michelle Bull, Physios For ME, and Royal Surrey NHS Foundation Trust, UK

• Prof Todd Davenport, Department of Physical Therapy, University of the Pacific, Stockton, California, and Long COVID Physio Education Co-Director, USA

Learning Objectives:

1. To be able to accurately describe, teach and translate knowledge on symptom contingent pacing.

2. To understand pacing from the lived experiences of people living with Long COVID, and strategies for effective implementation

Please Note: Workshops will not be recorded for on demand content

Post Exertional Symptom Exacerbation

In this Science session Prof Todd Davenport will present on post exertional symptom exacerbation, followed by a panel discussion with Hannah Wei, Margaret O'Hara, Lauren Singh, Melinda West Maxwell and Alyssa Minor.

• Prof Todd Davenport, Department of Physical Therapy, University of the Pacific, Stockton, California, and Long COVID Physio Education Co-Director, USA

• Hannah Wei, Co-Founder Patient-Led Research Collaborative, Canada

• Dr Margaret O'Hara, founding trustee Long Covid Support, UK

• Lauren Singh, Alberta Health Services, Canada

• Melinda Maxwell, Co-Founder and Co-Administrator for Physical Therapist/Occupational Therapist Resources for Treating ME/CFS Facebook Group, USA

• Alyssa Minor (she/her), Long COVID Physio Open Executive Member, Canada

Learning Objectives:

1. To better understand the symptom presentation and pathophysiology of post exertional symptom exacerbation

2. To better understand assessments and safe rehabilitation approaches for people with post exertional symptom exacerbation

What is safe Long COVID rehabilitation?

In this Discussion session chaired by Jessica DeMars, safe Long COVID rehabilitation will be discussed by Prof Fiona Jones, Dr Daria Oller, Dr Sue Pemberton, Prof Doug Gross, Ippokratis Angelidis, Prof Monia Verduzco-Gutierrez, Rachel Tarrent and Francis McGuire.

• Jessica DeMars, Long COVID Physio Advocacy Co-Director, Canada

• Prof Fiona Jones, St George's University of London, UK

• Dr Daria Oller (she/her), Long COVID Physio Education Co-Director, USA

• Dr Sue Pemberton, Therapy Director, Yorkshire Fatigue Clinic, UK

• Prof Doug Gross, Department of Physical Therapy, University of Alberta, Canada

• Ippokratis Angelidis, Long COVID Advocate, Greece

• Prof Monica Verduzco-Gutierrez, University of Texas Health Science Center at San Antonio, USA

• Rachel Tarrent, Leeds Community Healthcare NHS Trust, UK

• Francis McGuire, Physiothérapeute at MyPhysio Swiss, Switzerland

Learning Objectives:

1. To be able to confidently identify red flags to Long COVID rehabilitation

2. To better understand the assessments, modifications and safe rehabilitation approaches or interventions for people living with Long COVID

Health Systems and Rehabilitation Care

In this Science session Dr Simon Décary will present on health systems and rehabilitation care, followed by a panel discussion with Lisa McCorkell, Rachel Moses, Ann Li and Prof Nicola Kayes.

• Dr Simon Décary, Assistant Professor of Rehabilitation and director of the Patient-Oriented Rehabilitation Lab (SPOR-REHAB), University of Sherbrooke, Quebec, Canada

• Lisa McCorkell, Co-Founder Patient-Led Research Collaborative, USA

• Rachel Moses (she/her), Consultant Respiratory Physiotherapist President of the British Thoracic Society, UK

• Ann Li, Long COVID Europe, Belgium

• Prof Nicola Kayes, Professor of Rehabilitation and Co-Director Centre for Person Centred Research Auckland University of Technology, New Zealand

Learning Objectives:

1. To better understand Long COVID rehabilitation care models including referral principles, service delivery setting, and workforce

2. To better understand the components and functions of Long COVID rehabilitation care models

Dr Emma Stokes

In this Keynote presentation Dr Emma Stokes will acknowledge how serendipity and finding signals amongst the noise, has resulted in networks that connect to create change.

• Dr Emma Stokes (she/her), Associate Professor of Physiotherapy, President World Physiotherapy, and Vice President for Global Engagement Trinity College Dublin, Ireland

Opening of the virtual Long COVID Physio International Forum with welcomes from Darren Brown, Dr Jimmy McKay, Bex Smith and Dr Richard Nielson.

• Darren Brown (he/him), Chair Long COVID Physio and Clinical Academic Physiotherapist, UK

• Dr Jimmy McKay, Science Communicator for the Department of Rehabilitation and Human Performance at Mount Sinai Hospital System, USA

• Bex John (she/her), Vice-Chair Long COVID Physio, UK

• Ash James, Chartered Society of Physiotherapy Director of Practice and Development, UK

• Dr Richard Nielsen, founding President and CEO of Rocky Mountain University of Health Professions, USA